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About dementia care

What is dementia?

Dementia is a syndrome (a collection of symptoms) caused by disorders impacting the brain. [1] It can affect thinking, behaviour, language, memory, personality, and the ability to perform everyday tasks. [2] Over time, a person with dementia may grow steadily more dependent on others [3] while brain changes can lead to expressions of agitation, anxiety, depressed mood, apathy, or aggression. [4] Changes in a person’s personality or behaviour might also stem from pain, stress, or frustration or fear of being unable to communicate needs. [5] As people with dementia have unique histories, experiences and needs, how these changes present will differ from person to person. [6]

Dementia in Australia

Dementia is a major health care issue in Australia with an estimated 400,000 people currently living with the condition. [7] It is also a terminal condition and a main cause of death for both men and women in Australia. [8] As the risk of dementia rises with age, the number of people affected by dementia is expected to increase as more Australians reach older age in the coming decades. [9] This is likely to place a significant burden on health and social care services while impacting on the lives of individuals, their friends, and families. [10]

Dementia in aged care

Aged care services are a critical resource for people with dementia and their carers. [6] Over half the people living in residential care are living with dementia. [9] Around 80% of them will be classed as having high care needs, especially in the areas of cognition, verbal and physical behaviours, and  activities of daily living such as mobility, continence, and nutrition. [9, 11]

A larger proportion of people with dementia (around 65%) are thought to be living at home where many are cared for by unpaid carers, often family members. [6] Some (14%) live alone. [9] Aged care can provide home support or home care services to help people continue living at home. This support ranges from help with shopping, cooking, and cleaning to assistance with self-care, property maintenance, transport, continence, home safety, assistive equipment and nursing and allied health services. [12] People in the community may also be eligible for short-term residential respite. [13]

  1. World Health Organization. Dementia [Internet]. 2021 [updated 27 Jan 2021; cited 2023 Aug 18]. Available from: https://www.who.int/news-room/facts-in-pictures/detail/dementia  
  2. Dementia Australia. About dementia [Internet]. Dementia Australia; 2020 [cited 2023 Aug 18]. Available from: https://www.dementia.org.au/about-dementia/what-is-dementia  
  3. van der Geugten W, Goossensen A. Dignifying and undignifying aspects of care for people with dementia: a narrative review. Scand J Caring Sci. 2020;34(4):818-38.  
  4. Dementia Australia. Changes in behaviour and dementia [Internet]. 2022 [cited 2023 Aug 18]. Available from: https://www.dementia.org.au/national/support-and-services/carers/behaviour-changes  
  5. Royal Australian College of General Practitioners. RACGP aged care clinical guide (Silver Book) [Internet]. East Melbourne, Vic.: RACGP; 2019 [cited 2023 Aug 18]. Available from: https://www.racgp.org.au/silverbook  
  6. Australian Institute of Health and Welfare. Australia's health 2020 data insights [Internet]. Canberra, ACT: AIHW; 2020 [cited 2023 Aug 18]. Available from: https://www.aihw.gov.au/getmedia/be95235d-fd4d-4824-9ade-34b7491dd66f/aihw-aus-231.pdf.aspx?inline=true  
  7. Dementia Australia. Dementia statistics: Key facts and statistics [Internet]. Dementia Australia; 2022 [updated 2023; cited 2023 Aug 18]. Available from: https://www.dementia.org.au/statistics  
  8. Australian Bureau of Statistics. Causes of death, Australia [Internet]. Canberra, ACT: ABS; 2021 [cited 2023 Aug 18]. Available from: https://www.abs.gov.au/statistics/health/causes-death/causes-death-australia/latest-release  
  9. Australian Institute of Health and Welfare. Dementia in Australia [Internet]. Canberra, ACT: AIHW; 2021 [updated 2023; cited 2023 Aug 18]. Available from: https://www.aihw.gov.au/reports/dementia/dementia-in-aus/contents/about  
  10. World Health Organization. Dementia: Key facts [Internet]. 2021 [updated 2023 March 15; cited 2023 Aug 18]. Available from: https://www.who.int/news-room/fact-sheets/detail/dementia 
  11. Australian Institute of Health and Welfare. People's care needs in aged care: GEN aged care data, factsheet 2019-20 [Internet]. Canberra, ACT: AIHW; 2021 [updated 2021 Jun 22; cited 2024 Feb 20]. Available from: https://www.gen-agedcaredata.gov.au/getmedia/253a1f5a-24e6-49a1-8509-ee57d311f09f/Care-needs_fact-sheet-2021.pdf?ext=.pdf 
  12. Australian Government. My Aged Care: Help at home [Internet]. n.d. [cited 2023 Aug 18]. Available from: https://www.myagedcare.gov.au/help-at-home  
  13. Australian Government. My Aged Care: Short-term care [Internet]. n.d. [cited 2023 Aug 18]. Available from: https://www.myagedcare.gov.au/short-term-care
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